“Day By Day”

As a kid I saw “Godspell” on Broadway. I loved the music, dance, and story. Today I am old and ill. A reader asked what causes me to suffer. I won’t bore you with a long list of illnesses. I suffer greatly with several painful and terminal illnesses. Despite pain medications I am always in pain. At best the pain is managed to level 7 of 10. The average pain level is 9.

I appreciate all your support! I am frequently homebound. Your emails, comments, likes and occasional cards improve my attitude, ease pain and help me feel not alone.

Everyday I wake approaching things with the best possible attitude. At the end of the day I am at the top level of the pain scale. Each morning I also evaluate whether or not I can go on from here. “Day by Day” I choose to live or die.

Tuesday Was a Good Day

I had a normal day today! Woo Hoo! I was able to successfully manage pain all day today. I set alarms for all medications and for testing blood sugar and treating high blood sugars with Insulin. I’m going to set this up as a “normal” routine and see how it goes.

Monday & Tuesday were Amazon’s Prime sale days. I bought 2 new Echo Shows for free. By trading in the old units and taking advantage of the sale prices I was astounded to find both upgrades were free. I’m already using the Echo Show 5 and like it very much. It’s much smaller than the Echo Show 1 but has major PRIVACY IMPROVEMENTS. The first thing I did was close the camera cover. It’s a manual switch that slides to cover the camera. I’m using this unit as my “alarm clock” so the last thing I need is the camera spying on me. I also automated the flushing of the units browser every 4 hours (this was done with some pretty cool Linux Shell Scripting).

Pain Eased-Up

Monday afternoon the pain started easing-up. The Pancreas calmed down and allowed me to relax a bit. Pain has: physical, emotional, psychological, and social consequences. I haven’t been able to leave the house for 5 days. Add “cabin fever” to all of the other issues.

I don’t know where to go with all these issues. I wish I could have a normal life, do normal things, etc. I can no longer pretend. I can only hope people understand.

Thank you for the comments you leave on the Blog – I can’t express how much they help.